Thursday, September 21, 2017

Endometriosis and Kidney Disease

I've been tired this year.  I have emotionally been through a lot, so I attributed my unrelenting fatigue to a year that included a lot of stressors. Back at the beginning of August I went to my physician for a check up.  I was expecting them to tell me that I was likely just worn out and needed to rest.  I wasn't sure how this would work, since I was already sleeping about 14 hours a day, but I figured it was probably nothing.  Instead it turned out to be something. 

My labs were off, indicating that my kidneys weren't doing their job. My labs have been mildly abnormal for about a year, so my doctor sent me off to a nephrologist, a kidney specialist.  I was diagnosed with Chronic Kidney Disease, stage 3, based on my labwork.  The other interesting finding is that my body had extremely low stores of iron and downtrending hemoglobin.  This anemia was the cause of my extreme fatigue.  The kidneys produce a hormone, erythopoeitin, which stimulates red blood cell production, which carry oxygen. My kidneys weren't telling my body to produce enough red blood cells. I was prescribed oral iron supplements.  After about six weeks of oral intake of iron, I still wasn't feeling better, so I began a series of iron infusions. Finally I am feeling better. The picture you see with this post is one of my infusions of iron.

The biggest question is, how did I end up with kidney disease? 

Well, based on my medical history, the nephrologist had an answer for that too.

Endometriosis.  My constant companion of chronic pain.

I have had endometriosis (a disorder of the reproductive system where painful lesions of endometrial tissue grow outside the uterus and adhere to other organs, tissues, and vital structures) likely since I was 13. This disorder is characterized by excruciating pain, and a whole host of other unpleasant symptoms.  This disease is only diagnosed by surgery, which I had in September of 2016.  To combat the pain, I took exorbitant amounts of ibuprofen.  Sometimes up to 24 pills a day, that is 4800 mg, or about 1200 mg more per day than the recommended Rx dose.  The kidneys filter drugs from the blood, and my kidneys have taken over twenty years of abuse from ibuprofen. 

I have been very quiet about my endometriosis because there is such a stigma involved with menstruation and the female reproductive system.  But I am tired of being quiet about it.  Endometriosis has had very significant consequences in my life.  I have extensive scarring.  I am having a second surgery on October 3.  Endometriosis is one of the most common contributors to infertility, and I have been diagnosed with this also. Endometriosis causes intense pain, which I average feeling about 2-3 weeks per month. Endometriosis has irreversibly damaged my kidneys.  Kidney Disease has a very slow progression, and because I have eliminated all NSAIDS from my life, my trigger for kidney damage, my disease will likely stay exactly where it is and I will not ever need dialysis or transplant. Since I do not have diabetes or high blood pressure, my kidneys are not under stress  any longer. 

This post, my coming out about endometriosis and its consequences in my life, is my attempt to destigmatize and demystify the disease.  Watch for more posts to come.

Monday, August 21, 2017

Nevertheless, she persisted...a sermon on Matthew 15:21-28

Grace, Peace, and Mercy are yours from the God of abundance. Amen. 
 
It is a joy and an honor to be sharing the Word today at All God’s Children. My name is Amy Hanson, I am an MCC transfer clergy member. I was originally ordained in the Evangelical Lutheran Church in America. I work full time as staff chaplain at Regions Hospital in St Paul.  It is truly a gift to be a part of this community of faith. 
 
I love Gospel stories where the main character is a woman.  It means that what is going on so significant, that the patriarchy begrudgingly allowed it to be included.  And that is exactly what we have going on with this Gospel text.  
To set the stage, this part of Matthew’s Gospel is a long series of healings, pronouncements, and miracles.  We have Jesus healing the sick, feeding the 5,000, and just last week, we heard about Jesus walking on the sea. After today’s Gospel story, we have Jesus going on to Galilee to do more healing and to feed an additional 4,000 people in another one of his miracles. 
 
Jesus left Jerusalem and went on to Tyre and Sidon.  A Canaanite woman from that region came and started shouting, “Have mercy on me, Lord, Son of David, mydaughter is tormented by a demon!”  But Jesus ignored her. And his disciples came to Jesus and said, “Send her away because she keeps shouting at us.” Jesus said, “I was sent only to the lost sheep of Israel.” But she came and knelt before him, saying, “Lord, help me.”  He answered, It is not fair to take the children’s food and throw it to the dogs.”  She responded, “Yes, Lord, yet even the dogs eat the crumbs that fall from their master’s table.”  Then Jesus answered her, “Great is your faith. Let it be done for you as you wish.” Then her daughter was healed instantly. 
 
It is necessary to unpack this text a bit more to understand just how revolutionary and forthright this Canaanite woman is in her persistence. First, there is the obvious fact that she is a woman talking to a man. This alone would have been frowned upon in this day.  The disciples indicate their irritation and frustration with her desperate shouting. Next, she is from the land of Canaan, a Canaanite.  She is not part of the People of Israel. She is “other.”  Finally, unlike many people in Matthew’s Gospel, including the disciples themselves, she recognizes that Jesus is someone revolutionary. That he is in the world to do a new thing.  She calls him “Lord”, which is usually used to refer to God the Creator, and she calls Jesus, “Son of David” which implies his kinship in the line of the great King David. 
 
But Jesus doesn’t respond in a way that most of us would find satisfactory.  This is one of those Gospel stories that I refer to as “Jesus is being a jerk again.” At first Jesus completely ignores the woman.  And the disciples urge him to send her away, because she keeps shouting. Nevertheless she persisted. Jesus says to the woman, “I was only sent for the lost sheep of the house of Israel. I was only sent to tend those who are part of the people of Israel, God’s chosen people.”  Nevertheless, she persisted. She kneels before him, and begs plaintively, “Lord, help me!” Jesus answers, “It is not fair to take what is promised to the children of Israel and feed to other people.”   And the woman retorts, “But Lord, even the dogs get to eat the crumbs from the masters’ table.” And somehow this final plea gets through to Jesus. He responds, “Woman, great is your faith. Let it be done for you as you wish.” And the narrator tells us that the woman’s daughter was healed instantly. 
 
What happened in this moment? Did the woman’s persistence for her daughter’s healing change Jesus’ mind? This feels like a slippery slope to go down, given that we all have at one point or another prayed without ceasing for something that may or may not have come true. Is it that if you have great faith, good things will come to you? This doesn’t feel true either. I meet many people in the hospital with great faith who still suffer and experience grief and loss. 
 
What if in this moment, the woman recognized that the blessing of Jesus was not just for the people of Israelbut for all people? It is really remarkable that she recognizes Jesus as Lord, and Son of David, when the disciples don’t seem to get it yet. The woman recognizes that Jesus’ kingship is not just for the house of Israel, the chosen ones. It is for all people.  She has so much faith that even a “crumb” of Jesus’ power is enough to heal her afflicted daughter. 
 
Who is God for this woman that she could persist in this way? She really is a model for us. As the beloved community of MCC, how often have we felt like the good news of the Gospel, the promise of Jesus, and the reign of God belongs to someone else? God for the Canaanite woman is a beacon of hope in a dark world.  As the MCC, God’s promise belongs to US! God’s abundant life belongs to US! The Canaanite woman teaches us that the abundant new life that comes from Jesus is too big and too much to be contained by human structures of who is in and who is out.  
 
This Canaanite woman can teach us something.  “This Jesus news is too abundant to say that I must wait.” She is reflecting Jesus’ own ministry back to him. The Canaanite woman calls out the misguided idea that God’s love is only for a chosen few. 
 
We are God’s beloveds. God’s promise is for us. Abundant life and blessing and healing and good things are for us. Amen. Amen. Amen. 

Monday, July 31, 2017

Breaking Point

I work in a field where I am reminded every day that someone out there has it worse than I do. But today feels like an insurmountable day. It feels like there are mountains to climb and I just can't do it. I am doing my best to survive my divorce, but it is really, really hard. I am hoping that writing about it will help today.

My ex (she who shall not be named) and I began to have issues last summer, nearly one year ago. I am not going to tell her actions to the internet because I am attempting to keep in check my desire to slander her. She wronged me greatly, and I will leave it there.

We tried many months of therapy. We tried a couple months of separation while she was in Washington, DC. Nothing worked. On Valentine's Day, she told me that she had fallen out of love with me. She began to mention divorce.

We agreed to a trial separation for the spring.  It was to be twelve weeks. I located an apartment for us, I would take the first six weeks, she the second. I packed up belongings to take to the apartment. I wasn't happy with this solution, but I was attempting to make it work.  I got really sick just before I was to move. She had to move all my belongings out of our shared house and into the apartment while I slept for days on end. 

After I emerged from the fog of sickness, she told me to drive to my new apartment. She said this wasn't permanent, it was just a trial. Until she told me differently two days later.

On April 3, she said she wanted a divorce. This is the day that everything changed. I shifted in my mind from being married to being divorced. Up until that point, she was the one who wanted divorce. From this moment,  I wanted the divorce. I wanted to be free from nearly a year of unrelenting pain and walking on eggshells and weekends where she would kick me out of our house and make me stay in a hotel because she didn't want to see me.

What do you do on the day when your whole life falls apart?  I went to work, because I didn't know what else to do. And I have been forging forward and attempting to put the pieces back together ever since. 

The actual process of divorcing has been a nightmare. We attempted a collaborative divorce process. This was an attempt to save money and expedite the process. But she has dragged her feet and stuck her head in the sand all along. She has gone many weeks without communicating with me or our financial planner (who is doing the division of assets) and our attorneys. She has blocked my calls and text messages. She refuses to turn in documents that are requested by the financial planner. This has now dragged on for four months.

I am at my breaking point today. I am at a loss of what to do. I am again mired in the concrete of her passive aggressive refusal to move forward. She has yet again refused to turn in required documents. Our financial planner is going on vacation for a week. So I am staring down another week with no progress. No potential of filing the divorce decree this week. Another week of unknowing and still being entangled with someone with whom I want no further contact.

I am no longer hurt, I am enraged. I am enraged that I have become the driver of this divorce. I am enraged that she refuses to extend even a shred of common courtesy to me or to the professionals attempting to facilitate our divorce.

I am heartbroken at the hatred I feel for someone that I used to love. I am heartbroken at the coldness and calculation with which she has approached this divorce. 

Today is a breaking point for me. I am just not sure yet what has broken.

Thursday, July 06, 2017

Helping a friend through divorce

I wish that I was not joining the ranks of the divorced. This is not what I wanted for myself, my life, or my marriage.  It was not initiated by me, although I am now pushing forward to complete the process.

I wish more than anything that this was not my life path. But it is. And I have learned a few things along the way, that might be helpful for those who are helping a friend through divorce. 

The helpful things:

1. You can attempt to recognize the extent of the impact of the divorce
A divorce is said to be like a death with no body. This is true. The ugly withered fingers of divorce work their work into just about every area of your life.  For me, I lost my home, my pets, and started over with $0 in my bank account. Everything changes in an instant. Your friend will feel like the bottom dropped out from under them.

2. You can offer your friend grace when they are too tired, sad, or otherwise having difficulties coping
Divorce takes a tremendous amount of energy.  Just existing takes energy. Your friend likely won't be as productive as they once were. They might be too exhausted to keep up with social obligations. They probably won't remember dates, times, or other things.  Extend them grace. My employer has been tremendously gracious to me throughout this season of my life, and I cannot express my gratitude enough.

3.Make sure your friend is eating healthy food
One of my colleagues gave me gift cards to the cafeteria to make sure that I was eating real food. Other friends brought me coffee, invited me out for breakfast, or otherwise made sure that I was actually consuming food and not subsisting on cereal and bananas.

4. The little things matter more than you will ever know
The little things that so many of my friends did for me will not be forgotten. Allowing me to do laundry in their homes so that I didn't have to pay for the Laundromat. Picking me up from the airport so I didn't have to take an Uber. Asking me how I was doing and listening to the answer. Making me laugh with funny instagram pictures and cat videos and pictures of their children.

5. Make sure your friend has a place to go with you
Holidays are hard. Weekends are hard. Special days like anniversaries and birthdays are hard. I am thankful for all the people who reached out to me and took me out for coffee and trips to the farmer's market or walks or board game nights so that I didn't have to be alone with my thoughts. I am thankful for my family who flew me home to Montana for Easter.


The not so helpful things
1. Don't draw comparisons
Every divorce is different, just like every marriage is different. Your divorce/your parents divorce/your siblings/friends/neighbor's divorce is going to be different from mine. Just because you have lived through a divorce in some capacity does not automatically make us the same.

2. Don't triangulate/enable triangulation
This is just good advice for life, but also good advice in the aftermath of a divorce.  Don't tell me about what my ex is doing. Don't carry messages to/from my ex. Just don't.

3. Don't give advice/pass judgment
I unfriended and blocked someone really quickly for saying, "every divorce has two people involved in it and two sides to the story" when I reached out for support on a particularly bad day. Also, don't give advice unless specifically asked.

4. Don't slander my ex
Of course this is something that I want to do, and I may even do in therapy and with my close friends. But it is not helpful for you to do it for me.  Please don't.

5. Don't treat me any differently
I have experienced a loss, but I am not lost. My heart was broken, but I am not broken. I am angry, but I am not enraged. Please just be my friend.

Thursday, April 13, 2017

Why I'm breaking up with the ELCA

I have started and re-started this post so many times. I wish there was an easy way to say this. I used to love the ELCA. But I don't anymore.

This is my story of how I broke up with the Evangelical Lutheran Church in America.

I have literally been a lifelong Lutheran. I was baptized at just over one month old at Hope Lutheran Church, in Bozeman, MT. As a child, church was a place of comfort and belonging. I played my trombone in the church. I was an active member of youth group. I went to Lutheran bible camp. "Lutheran" to me always had connotations of warmth and home.

I went to a Lutheran liberal arts college. I spent six summers working at two different Lutheran bible camps. I participated in a  Lutheran volunteer program for a year. I used to be proud to be a Lutheran.

Just before I turned 30 I followed the call to seminary. I attended a Methodist seminary, because it was in Denver and so was I. I entered into candidacy, the process that prepares seminarians to become pastors.  I had a wonderfully supportive candidacy committee. They nurtured me and helped me to grow. Seminary was a great experience. I loved Clinical Pastoral Education. I loved my internship. I got clarity on what God was calling me to do, which is the hope of any vocation, and I learned that I was called to be a hospital chaplain.

This is not acceptable in the eyes of the ELCA. 

Chaplaincy is considered a "specialized ministry" in the ELCA. Other ministries in this category are military chaplaincy, campus ministry, and outdoor ministry.  Before you can receive a call to specialized ministry (a piece of fancy paper that allows you to receive ELCA benefits, pension, and so on), you are required to serve as a parish pastor for three years. This is referred to as the "3 year rule."

I have heard from several bishops, who shall remain nameless, the following with regards to this rule:

"It is the only way that you will learn how to be a Lutheran leader."
"The parish is the location of the ministry of word and sacrament."
"We have a clergy shortage in parishes."
"We need first call pastors to be in congregations that could not otherwise afford them." (ie: cheap labor)
"The truest calling to the ministry of word and sacrament is to be a parish pastor."
"Every one else has had to do it, and so do you."

But somehow, something magical happens after three years in a parish that allows you to do specialized ministry.

I will admit that I have known about this rule since I entered seminary. I also knew that it would be extraordinarily difficult to bypass. I will own that.  However, if your bishop is willing to bring an exception regarding this 3 year rule to the other bishops, the Council of Bishops, it is likely that your exception will be granted.  This is particularly frustrating because different bishops are more rigid gatekeepers than other bishops. In other words, if your bishop likes you, they will bring an exception on your behalf. If your bishop doesn't like you, you are out of luck.

This year I found myself with a full-time chaplain job and only 6 months of parish ministry experience. (Because the yearlong parish internship doesn't count as experience.) I also found myself in trouble with my bishop.

When I asked if an exception to the three years rule could be made, I was denied. I was also advised to "leave this denomination if you can't follow the rules." Shortly thereafter I was thanked for my "caring and compassionate ministry in this city." Which feels like a kick in the stomach, given that this same ministry is not recognized as Word and Sacrament until three years have passed while working in a parish.

This denomination needs to evolve or it will die. The ministry of word and sacrament isn't confined to a church. The role of parish pastor is just one expression of word and sacrament ministry. It is not possible to make every candidate fit a parish-shaped hole. Just because you have open congregations that cannot afford to pay a pastor with more experience doesn't mean that you should force people into serving parishes who have another calling.

I am a chaplain in my soul. I love my work. It gets me out of bed every day and I fall asleep satisfied every night. I can point to tangible things that I do to alleviate suffering in this broken world every single day. I am happily doing ministry, perhaps some of the best evangelism there is, at the bedside of my patients. I hear from many people that having a chaplain at the bedside of their dying loved one is such a comfort, and might inspire them to return to a church. 

I am doing God's work. I am doing sacred, beautiful, painful, and holy work. It is not in a parish. It does not directly support a congregation. I am doing the thing that I simply must do. 

And so, because the denomination of my baptism, confirmation, first communion, and ordination will not recognize this work, I am breaking up with the ELCA.